A year ago today I was in the Operating Room at Beth Israel Medical Center/Mt Sinai Hospitals filming with Dr. Mark Smith and Dr. Joe Dayan. Working with them has been a marathon of a different sort and it looks like we are about to cross the finish line! The 1st Center of Excellence for Lipedema Care and Treatment in NYC in the USA is soon to be a reality! www.lymph.org These pictures are from our trip to Germany March 2014.
The Friedman Center for Lymphedema Research and Treatment is located at 10 Union Square East, Suite 2L, New York, New York, 10003. Lymphatic surgery is performed at Beth Israel Medical Center located on First Avenue and 16th Street in Manhattan.
Dr. Stefan Rapprich, from Frankfurt Germany, co-developed with Dr. Gerhard Sattler, the use of specialized lymph-sparing liposuction as a treatment for lipedema in Germany over 15 years ago. He will be making presentations in Boston and NY this fall, primarily to healthcare professionals in order to raise awareness of lipedema and the development of successful treatment.
Dr. Josef Stutz, from Schwarzenbach am Wald in Germany, co-developed the use of WAL, water-assisted jet liposuction, for treatment for lipedema. He is especially skilled in working with very advanced cases of lipo-lymphedema in addition to earlier stages.
Drs. Rapprich, Sattler and Stutz are three of a handful of specialists & experts who are knowledgeable about both lipedema and the lymphatic system. I will be profiling many of these experts over the next many months.
Join the discussion 14 Comments
Catherine you are a true inspiration and doing amazing things! One person can make a difference.
This is AWESOME news!!! I can’t wait for this procedure to be available in the USA!! Lovely pics too, Catherine! You are AMAZING too!
Now we just need it here in Australia my legs are gigantic and they hurt so very much
Very exciting to see this new development..
Reblogged this on My Lymph Node Transplant and commented:
This is very exciting news for anyone who has Lipedema or a combination of Lipedema and Lymphedema.. Dr Dayan is already well respected for his Lymph node transfer surgery and the addition of treatment for Lipedema can only be of benefit … I am reblogging this and thank Catherine for bringing us this news..
After going through a series of testing April 16-17, I will be having lymph node transfer surgery in my leg July 21 with Dr. Joseph Dayan. I am optimistic yet nervous about my upcoming procedure. I do not live in NYC so I will be commuting from the DC area. I am thrilled to read all the posts about other lymphedema patients and eagerly anticipate all the information that is being sent on this blog..Thank you
Joanne i wish you well in July… I think we are all anxious before the surgery but you are in good hands.. Let us know how you go
Thanks for your comments. I think that these doctors are quite amazing, they care about these unrecognized disorders and they bring such a high level of skill and caring. Good luck JoAnn, they have had a lot of success with lymph node transfer and are on the leading edge.
My hero Catherine,
I want to personally thank you again for being a pioneer in this misunderstood disease. I’ve been to many Doctors who just judged and said your just obese and didn’t understand me or my sister and my mother also who also have Lipedema. I’ve been up to NYC many times to meet Dr.Joseph Dayan and had many tests. The staff is amazing and supportive . Looking forward to having surgery and living a normal life without pain and prejudice.
Reblogged this on Lip Lady Fashion & Beauty and commented:
This is such exciting news for every women suffering with Lipedema! Stay tuned for more updates from Lipedemasimplified.wordpress.com …another great blog to follow! JUNE is Lipedema Awareness Month, so spread the word! You never know who it might help!
Thanks for reblogging Crystal, I am very excited that these doctors went to Germany to learn more from the experts in lipedema there and are now beginning to treat here in the US.
Hi Catherine, I’m in Boston. How do I contact you or someone to find out more. I have been looking for answers for why I’ve had this “issue” with my legs since puberty and doctors kept telling me they were just big legs. I will fill out the form below with my contact info. Thank you.
Hi Sandra, send me an email with your info to [email protected] and I will call you.
I am a nurse who has lipedema BLE I am rather tired of being asked if I have heart trouble and people making disparaging comments about my legs… I live in Wine Country of Long Island….
Perhaps I could be helped!!!