My main focus has been on Facebook and several closed lipedema groups, but I realize these groups, as helpful as they have been, are limited in their reach. There are so many who might not look there. So it’s time to reach out to those who might somehow stumble upon www.lipedema-simplified.org looking for answers. And these BLOG posts will be much of my meanderings as I travel the path to understanding and hopefully spreading the word about lipedema/lipoedema.
Let me talk about YES & NO. It may sound strange since they might be the 2 first words we learn. Mostly I want to talk about and embrace YES. Definition is “positive response.” I would add to that: a YES, a full YES, is a surrender to what is. So learning how to live, fully live, at it’s core, is learning how to say YES!
Having lipedema is not fun, but a constant condition that is forever present. Yet, there are gifts, amazing, and treasured gifts. I am beginning to realize each day the mighty and profound nature of challenges, of all kinds. So surrendering to having lipoedema, and saying YES, is a commitment to research and learning and raising awareness.
I welcome you to join me on this journey, perhaps it’s a familiar one to you. WELCOME!
I’m excited for your new blog posts! I’ve been “going public” about lip lately as well. Hopefully enough of us will create a great force of good and awareness for the lip community so others have an easier path than we did and more ladies get diagnosed early!
yes Michelle, I was 63 years old when I finally figured it out, and sometimes just think about how my life would have been different had I known when lipedema first appeared in my early teens. Glad we are working together now though, towards awareness raising and change!