Lipedema/lipoedema was first named as a disorder/disease at the Mayo Clinic by Dr. Edgar Hines and Dr Edgar Allen in 1940.  Lipedema, known as lipoedema in Europe, is a chronic disorder of the adipose tissue generally affecting the legs, which causes the legs, and sometimes the arms, but not the feet, to accumulate fatty tissue. It’s been 74 years and only now with grass roots advocacy is lipedema receiving attention in the U.S. Help raise awareness.

June is Lipedema/lipoedema Awareness month. Beginning on June 1st, and all month long, I will be posting 1-3 minute short micro-documentary clips from the raw footage in process of being edited into a full length documentary. There will be postings on patient experiences, the process of diagnosis, conservative treatment: compression and MLD, lymph-sparing liposuction, information about the issues of anti-fat bias in healthcare, and interviews with many of the experts from Europe and the US including Dr Stefan Rapprich, Professor Dr Manuel Cornely, Dr Josef Stutz, Dr Reggy Schift, Professor Dr Foeldi, Dr Mark Smith and Dr Joe Dayan and several others.

Remember to spread the word about lipedema, There’s more to the story: You are not just FAT!

Join the discussion 5 Comments

  • helensamia says:

    Reblogged this on My Lymph Node Transplant and commented:
    Sharing for all those who have Lipedema or a combination of Lipedema and lymphedema. Many people do to realise they have Lipedema. Thanks Catherine for all your work

  • lois says:

    I live in upstate NY I saw a posting in the NY bill I found it because it was one of Dr. Herbst favorite web sites last night I went back to it and it was covered by a new law with the same # as the lipedema #’s would you know who to contact? It was a great writing with loads of pictures. I just feel like we take a step forward and get knocked down a step. I also can’t find DR. for my daughter’s to get diagnosed. I was diagnosed 50 yrs. ago and have never found another Dr. that knows anything about it so I don’t know what stage I am at this time. If you have any idea’s please let me know. I am willing to travel but, not to NYC. Thank you, Lois

  • Charlotte says:

    Hi, I think my Mum, sister and I have somethting like this. Do you know doctors in France ?

    • Hello Charlotte,
      The closest doctor I know is in Spain, Isabel Forner Cordero MD ,
      she is wonderful doctor, knowledgeable about lipedema, and also a very gracious person.
      Also several in Germany. Let me know which is closer for you.
      Best of luck to you,

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